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Hospice Patient and Carer Voices

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Hospice and Carer Voices
What is a hospice?
What is a hospice? What is palliative care? In this short film people living with terminal illnesses; their families; hospice staff and volunteers, set out to tell you. Patients frankly discuss their experiences, problems and desires for their treatment.

The patients featured in this film have found that hospice care helps them to cope with their illnesses and minimise pain. “Getting cancer ain’t that bad, you know? I know I’m still very ill in my body but coming up the hospice you look ‘round, you see other people and you can ask questions without people going ‘oh here we go, doom and gloom',” says one.

For those who come to a hospice at the end of their lives find the care and surroundings provided by hospices enable them to pass away with dignity and respect. It helps people to manage their fears and gives patients and families the support, relaxation and respect they require. As another patient comments, “My own understanding of a hospice is a place where I can go to forget about death, although it is unforgettable. I’m not now afraid of dying what I am afraid of is the pain. And the people try to minimise that pain.”

Many patients report negative experiences at hospitals, where they feel staff are over worked and unable to provide the level of care required by terminally ill patients. As one of the hospice doctors says: “Somebody facing a terminal illness, and that may be very early on in the diagnosis right though to the last day’s of life, have very different and very special needs some of which you can’t meet very easily in a hospital setting. So I’m not going to be critical of looking after people with terminal illnesses in a hospital but anybody who walks into a hospice will notice there’s a very different culture, a very different ambience which you don’t get in a hospital.”

The hospice featured in the programme also provides care for those left behind when their loved ones pass away, and a team of specialists providing the hospice care to patients who prefer to remain living in their own lives. Tune-in to Community Channel to hear the reflections and opinions of those receiving care from the nation’s hospices.
Last Updated ( Friday, 17 March 2006 )
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